Posted: November 14, 2016
2 Years Old at Diagnosis.
Written by Joe Diaz, father of Jax.
Jax surprised us with Down syndrome when he was born on January 30, 2014. In June of 2016, we noticed he wasn’t being his normal, energetic happy self. He was sluggish and fatigued most of the time and his appetite started to diminish.
Cynthia, his mother, noticed some odd spots showing up on his hands and feet and came to the conclusion he had caught hand, foot, and mouth disease. From there, his energy drastically dropped, which made us bring him in to see his pediatrician.
Quickly after seeing him, his doctor ordered blood cultures to be taken. Within three hours we were admitting Jax to St. Josephs Children’s Hospital. He was diagnosed with acute myeloid leukemia (AML) on July 12, 2016.
After researching this type of leukemia and going through the first treatment, we learned of the lack of funding that goes towards children’s cancer. We started the Trax of Jax FaceBook page, Instagram account and website to help spread the word and awareness of Jax’s story and the troubles such low funding brings.
Jaxon brings such an amazing spirit to this battle; he is constantly smiling and giving out his famous fist bumps to his nurses, doctors and other children in the hospital! He’s shown his resilience and we are trying to learn from him what it means to live in the moment.
AML has torn at us, our family, our finances, our jobs. We see in Jaxon a resolve that comes from somewhere special, a place we forget about or take for granted… maybe don’t even have. He has taught us a lot and will continue to teach us, and many more, what is to fight through the toughest of situations.
Watch this video to learn more about Jax:
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